Useful Links

 
 @@ Useful Links @@ 

 
 

Disability Specific Links

 
Disability Specific Links » @@
 
 
 
 
The National Attention Deficit Disorder Information and Support Service.
Tel: 020 8906 9068
 
 
View the 'Sleepseekers: Living with ADHD 24/7' booklet - this provides advice
and information regarding children who experience difficulties in sleeping. 
 
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Providing information about ADHD.
 
The website included downloadable editions of the ADDvance newsletter of the ADHD UK Alliance.
 
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Afasic is the UK charity representing children and young adults with
communication impairments, working for their inclusion in society and
supporting their parents and carers.
 
  Tel: 0845 3555577  (10:30 to 14:30 Monday - Friday)
  Email:  hlmgr@afasic.org.uk
 
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This website features a range of information sheets relating to Spina Bifida and Hydrocephalus
 
 
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 Asthma UK Advice Line:  0845 7010203
 
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A charity dedicated to supporting people with Ataxia. The website features a range of information and publications about Ataxia.
 
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A website providing autism news and details of events.
 
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Autism Wales information resource providing information about a range of autism services throughout Wales.
 
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The BBC Health site features useful information in the form of an alphabetically ordered index of illnesses and conditions
 
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  Tel:  0845 1302851
 
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BILD is a charity committed to improving the quality of life of people with
a learning disability. The site includes a range of downloadable factsheets
concerning learning disabilities and also a frequently asked questions section.
 
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Changing Faces is a national organisation that supports and represents children,
young people and adults who have disfigurements.
 
Changing Faces also have a new website for young people called iFace: www.iface.org.uk
 
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Visit the website to find a range of information about Cystic Fibrosis.
 
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The Deafblind UK website contains useful information about deafblindness.
 
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A source of information, contacts and discussion in relation to deafness and sign language.
 
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This site aims to provide useful information for disabled people from disabled people.
 
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The DSA provide information and support for people with Down’s syndrome, 
their families and carers and champion the rights of people with Down’s syndrome.
 
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A UK charity which helps people to understand and cope with dyspraxia. 
A resource for parents, teenagers and adults who have the condition, and
for professionals who help them.
 
Tel:  01462 454986
 
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Epilepsy Action aim to raise the awareness of epilepsy.
 
 
 
 
The website features a section for young people:
 
 
The website also features a kids' section:
 
 
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 Providing support and information to people in Wales with Epilepsy
 
 Helpline: 0845 7413774
 
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The Foundation for People with Learning Disabilities works to promote the rights,
quality of life and opportunities of people with learning disabilities and their families.
 
The website features some useful publications:
 
 
 
 
 
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Ask Mencap - an information service on learning disability issues, organisations and services.

Includes a wide range of useful factsheets and information for people with a learning disability.

 

View the list of Mencap factsheets

 

  Mencap Learning Disability Helpline:

  Tel: 0808 808 1111   (freephone 24 hour)

  Email: help@mencap.org.uk

 

  Mencap Wales Learning Disability Helpline:
 
  Tel: 0808 8000 300   (open from 8am to 8pm Mon - Fri and from 10am to 4pm Sat - Sun)
 
 
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This site features a range of information and factsheets about muscular dystrophies and allied disorders.
 
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The National Autistic Society exists to champion the rights and interests of all
people with autism and to ensure that they and their families receive quality
services appropriate to their needs. The website includes information about
autism and Asperger syndrome, the NAS and its services and activities.
 
 
  Autism Helpline: 
 
  Tel:  0845 070 4004 
  Minicom:  0845 070 4003
  Open Monday to Friday, 10am - 4pm
 
  Information, advice and support for people with ASD's, families/carers and
  professionals.
 
 
  Parent to Parent Line:
 
  Tel:  0800 9 520 520
  Open 24 hours - call any time and leave a message and contact number
 
  A free, confidential telephone support service for parents of a child or
  adult with an ASD. 
 
 

  NAS Factsheets:

 

 
 
  View the ‘Holiday guidelines’ factsheet – this provides information on preparing your child for a holiday
 
 
 
  View the list of ‘Diagnosis’ factsheets
 
   (This section contains information about the process of getting a diagnosis,
    where to go for advice and support, the effect on the family and  frequently asked questions)
 
  View the Diagnosis Flowchart
 
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UK charity exclusively dedicated to supporting all deaf children, young deaf
people and their families in overcoming the challenges of childhood deafness.
 
Helpline: 0808 800 8880 (Freephone)
 
 
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Information about epilepsy, frequently asked questions.
   
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Helping all blind and partially sighted people in the UK.
 
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The RNID website provides a range of resources and information about deafness,
including useful factsheets:
 
 
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A UK charity providing information about Deafblindness.
The site contains useful factsheets on deafblindness
 
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For information about cerebral palsy.
 
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Speakability is a national charity that works with people with aphasia. Around a quarter
of a million people in the UK suffer from aphasia, also known as dysphasia, as a result
of stroke, head injury or other neurological condition. People with aphasia find it hard to
speak, read, write or understand language.
 
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Providing support and information to parent / carers of a child with an unidagnosed condition 
and provide a listening ear through their helpline.
 
Helpline: 01922 701234
 
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Providing information about Tourette Syndrome
 
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Disability News Links

 
Disability News Links » @@
 
 
 
 
An online disability lifestyle magazine. Selected articles can be viewed online without subscription.
 
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The latest Disability Sports news.
 
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Link to an artilce about Asperger's syndrome on the BBC News website.
 
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BBC online disability magazine.
 
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The website of Disability Now, a campaigning newspaper for those with an interest in disability, including news and features.
 
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The site includes current disability news. View the latest issues of DW e-news. 
 
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International web magazine covering disability news and views.
 
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A weekly radio programme with news and information on blindness and
visual impairment. Broadcasts on Tuesdays from 20:40 – 21:00 or listen online.
 
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CBBC Newsround guide to disability.
 
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BBC TV programmes for people with hearing impariments.
 
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Viewpoint is the learning diasbility magazine produced by Mencap, which features wide ranging points of
interest for people with a learning disability and their families/carers.
 
  Previous issues of Viewpoint can also be downloaded and the website includes audio versions of the magazine.
 
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Links for Young People

   
 
@@ « Young People's Links
 
 
 
 
 
The Art Spider is a section of the Mencap website that is dedicated to learning disability arts
 
  Click the following link to visit the 'Give it a go' section where you can create a picture of your own:  www.artspider.org.uk/go.php
 
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This website hosts a large variety of fun games.
 
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A 24-hour helpline for children and young people to talk about any problems: 
 
  Freephone: 0800 1111
 
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Providing young people with a range of useful information.
 
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'Believe in your digital future' - a colourful website aimed at 16-25 year olds,  providing
information on a wide range of areas including education, employment and training,
environment, health and money. 'A guide to life, the world and everything'.
 
 
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The Foundation for People with Learning Disabilities works to promote the rights,
quality of life and opportunities of people with learning disabilities and their families.
 
 
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Funky Dragon is the Children and Young People's assembly for Wales.
It is a peer led organisation that ensures that young peoples views are
heard on issues that affect them. They have number of special interest
groups, including long term health illness and disability.
   
Also features a fun section!
 
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A website aimed at 7-11 year olds providing colourful information about health and exercise.
 
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A charity committed to keeping children safe, providing information and advice
about bullying. Includes a section for Children & Young People  and a section for Parents
 
 
 
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A good source of online careers advice.
 
 
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A website aimed at 11-14 year olds providing information about a range of health issues.
 
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A colourful website aimed at 14 to 16 year olds, providing information about health issues.
 
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24 hour confidential and emotional support for people in distress or despair.
 
Freephone: 0845 7909090 (local rate)
 
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The young people section of the Sibs website features a useful factsheet for brothers and sisters of a person with a disability.
 
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Skill is the National Bureau for Students with Disabilities. Their website features useful information about further and higher education.
   
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A site for 12-16 year olds living in the UK offering information,
an agony aunt and confidential one to one sessions.
 
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Information on Internet safety and safe surfing for young people. 
 
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A fun site from Mencap designed for young people with a learning disability, including a face maker, games, a coin machine activity and more!
 
For more fun links see the Fun Section
 
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A website aimed at 11-16 year olds that answers questions about health; includes a virtual surgery.
 
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A website aimed at 5-7 year olds providing information about health conditions.
 
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Promoting positive and safe internet use. Features a section for young people and a section for parents.
 
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A website providing information for young people about mental health.
 
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Links for Parents and Carers

 
 
@@ » Links for Parents & Carers
 
 
 
 
The big disability directory - with links to a wide range of disability focussed websites.
 
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The BBC website's parenting section - packed with information, advice and links on all aspects of parenting.
 
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An information resource for parents in Wales about schools. 
 
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The voice of Carers. Featuring a range of information for carers throughout the UK. 
 
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A service providing information on childcare in Rhondda Cynon Taf.
 
     Click the pictures below to view the Choosing Childcare booklet
 
 
        Choosing Childcare  ENGLISH
 
        Choosing Childcare   WELSH
 
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A website featuring a range of resources for parents and children with Autism. 
 
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A free, independent and confidential advice and information service,
providing information on topics such as benefits, health and housing.
 
 
Cynon Valley CAB - Tel: 08444 772020
 
Rhondda & Taff Ely CAB - Tel: 01443 409963 (Advice line) / 01443 409284 (Admin line)
 
 
 
 
 
 
 
 
 
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Helping families who care for children with any disability.
Helpline: 0808 808 3555  Textphone: 0808 808 3556  
 
  Click the following links to view some useful leaflets and factsheets from Contact a Family: 
 
 
  View the Living without a diagnosis factsheet   (Welsh language text)
 
 
  View the Special Educational Needs (Wales) factsheet
 
  View the Concerned about your child factsheet
 
 
 
 
  View the Holidays, Play and Leisure factsheet
 
 
 
  View the Finding and paying for childcare factsheet
 
  View the Checklist for Parents factsheet
 
 
  View the When your child has additional needs information guide
 
 
    Please click here to view a list of all Contact a Family factsheets
 
   
  View the Contact a Family  Frequently Asked Questions section 
 
 
  View Contact a Family's 'Making Contact' website
  
  (a site that puts families of disabled children in touch with each other)
 
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Providing information for parents/carers of disabled children, including a range of downloadable publications.
 
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Find out about issues affecting disabled people, and people who care for disabled people;
for example, Education and Schools, Health, Rights, Motoring, Benefits.
 
 
 
 
 
  
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Providing a range of useful information for disabled parents, including articles and stories written by disabled parents, factsheets and FAQs.
 
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This site provides information for families whose children are being educated outside school.
 
 
 
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The national information centre on fatherhood.
 
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Publishing a range of books about disability. Please see the site for specific details of the books available.
 
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This website provides information about Special Educational Needs.
 
 
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Information for single parents caring for children with a disability.
 
  Lone Parent Helpline:
 
  Freephone 0800 018 5026
 
  Monday to Friday 9am - 5pm
  Wednesday 9am - 8pm 
  
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A website providing information about your child's learning.
 
 
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Parenting topics and tips.
 
  Parentline:
 
  Tel:   0808 800 2222
  Textphone:    0800 783 6783
 
  A telephone helpline open 24 hours a day for parents to talk about
  any worries or problems.
 
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A group of parents and carers committed to contributing to positive,
fundamental changes in the service provision for disabled children,
young adults and those with a specific need throughout
Rhondda Cynon Taf.
 
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Lists details of all schools in Rhondda Cynon Taf.
 
 
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A website run by parents and carers of children with Tourettes Syndrome, ADHD and Autistic Spectrum Disorders.
 
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Sibs 
 
A website providing information to siblings of people with a disability or chronic illness.
  
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An advice centre for families of children with special educational needs.
Tel: 02920 388776
 
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An organisation committed to promoting opportunities for young people with visual impairments to access the arts.
 
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Promoting positive and safe internet use. Features a section for young people and a section for parents.
 
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Working families is a UK wide charity, which aims to help children, working
parents and their employers to find a better balance between home and work.
 
Tel:  0800 0130313
 
 
 
 
 
 
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Providing information about mental health issues relating to children and young people.
 
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